PEPA

PEPA provides an ideal opportunity to learn from experienced specialist staff to enhance skills, knowledge and experience in the palliative approach.

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IPEPA

IPEPA builds the capacity of the workforce to provide high-quality, holistic and culturally-responsive palliative care for Aboriginal and Torres Strait Islander peoples and their loved ones.

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Happiest of Fridays to you all! This is a reminder to take some time for selfcare. It is so important to look after ourselves so we can care for others. Self-Care Matters and there are great resources here from #palliativecareaustralia to support you and guide you through a moment of self care.palliativecare.org.au/resource/resources-self-care-matters/A quick 7 mins mindful breathing exercise is here - soundcloud.com/palliativecareaustralia/self-care-matters-mindful-breathing-guided-exercise ... See MoreSee Less
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PEPA program_official
On this National Sorry day, we remember the mistreatment of Aboriginal and Torres Strait Islander people who were forcibly taken from their families, Country and communities and never came home – the Stolen Generations. Accepting the truth of our history is a critical step towards addressing injustice. Historical injustice remains an ongoing source of trauma for our people. If we are to achieve our dream to ensure that our people have equitable access to palliative care and holistic health services then we all need to understand our important and ACTIVE roles in bringing healing to this Country.📷: NPY Women's Council ... See MoreSee Less
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1 month ago

PEPA program_official
#nationalpallitativecareweek #NPCW2022 is this week! The #Pepa National team was joined by some friends from other Palliative Care Programs such as, #eldac, #pcc4u and #pcop and the many of the research assistants at #Qut in a morning tea and fresh produce swap. Have you had any local events for #NPCW2022? We would love to hear about them! ... See MoreSee Less
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Ya (Hello) beautiful mob, this is my last Facebook post and I wanted to say what a privilege it has been to be connected to you. While in this role, I have grown in ways I could never have imagined and I owe that growth to countless people.However, those below have especially held my spirit with such love, generosity and wisdom. Each one of you have brought me teachings that have changed my heart in meaningful ways. I am a better human being having known you and I will always cherish the lessons you have gifted.❤️Rachael Pearson for teaching me that it doesn't matter how young you are, you can have ancient spirits like yourself with a contagious, radiant energy that makes your heart smile and instils nothing but beauty and hope. You are beyond special Rach xx 💛Helen Woodbridge – you have given me endless wisdom Aunty but the most profound has been to remind me that no one determines who we are as people and spirits, but us. 🖤Allyra Hulme for teaching me that unicorns do exist and that our ancestors have got us. ❤️Tam McGrath for teaching me to never give up, that with passion and solidarity, our mob will rise. Thank you for inspiring me and for being a mentor to me and so many others. You humbly operate behind the scenes but you create warriors and you will never know how many lives you’ve changed by just being your extraordinary self.💛Cindy Paardekooper for teaching me how to be an Aboriginal leader in a non-Indigenous environment. You are graceful but fierce, grassroots but strategic and wise but fun AF. Your integrity never wavers - you are a queen in every way a person can be Paarde xx 🖤Nicole Winters- gosh, where do I start B2? You are like the Aboriginal Dalai Lama. Thank you for teaching me EVERYthing there is to know about palliative care for our mob and how to be patient, open, understanding and see the opportunity for growth in things that challenge us. ❤️Kat Hooper for teaching me how even the most complex things in Western medicine can be translated and create access for our people. You are Blak Wizard like no other and I can’t wait for the world to experience your magic. 💛@Eliza Munro for awakening me like no other and setting me on this path. I know you aren’t on facey but you have been a friend, a sister, colleague, guide and so much more that it’s impossible not to mention you. Thank you for all the enriching yarns – that have been and that are to come. 🖤@Kelly Anderson for teaching me how to practice our worth – as a leader and as a community member. Your energy and intelligence builds and supports all those around you and I have benefited from that strength you lay down so generously.❤️Tracey Mander for teaching me that you can be equal parts naughty and professional and be deadly at your job while staying out of the HR office 😉 I love our laughs together. 💛Brooke Gallery for teaching me how to create inclusive and safe spaces where our communities can walk alongside each other in such a genuine way. And you teach all of this with that beautiful grounding and calming energy of yours. 🖤Janeen Foffani for teaching me to find the patience and humour in frustrating processes and details. And more importantly, alerting me to the existence of naked popcorn making ladies at the Fringe festival - I can't believe I could have lived a whole life without ever seeing that! Big love now and always,Nicole Hewlett ... See MoreSee Less
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So many lols 😂... Sean Choolburra ... See MoreSee Less
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Thank you Kat Hooper - you rock our world xx 💞 ... See MoreSee Less
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The positive impact we make

Participants continue to report that PEPA is positively impacting their knowledge and skills, resulting in the enhanced provision of care for people with life-limiting illnesses.

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Palliative care is very valuable, we only get one chance to get it right. Whether people choose to die at home or in a hospital or RACF the emphasis is on providing good quality end of life care and having the knowledge and confidence to carry it out effectively.  These placements provided me with a greater insight into all aspects of palliative care in different settings and social situations, the care of the client, the family and the carers.

AJ(Personal Care Worker)

Aged Care (QLD)

Upon completing Program of Experience in the Palliative Approach I have gained insight into a service that I was not entirely familiar with before undertaking this placement. I feel this experience was very worthwhile as I am able to now understand when a client would be referred to palliative care and what palliative care can do to help support and assist the patient and their family/carer at end of life care giving quality of life. Palliative Care is often an overlooked service as community are not aware or educated on how the service can help with end of life care.  This service can help reduce hospitalisations by caring for the patient in community and assisting with end of life care in particular keeping the patient comfortable and out of pain so they can still enjoy good quality of life. On this placement I was also made aware that there is an under representation of Aboriginal patients using Palliative Care in our local area on the Central Coast.  This made me realise that I could help educate and promote this service to our Aboriginal community so that they are aware that this service exists and is there to help. I was given education on this placement, as well, about Advanced Care Directives and Advanced Care Plans.  I was not overly familiar with these documents and was happy to receive education so that I am able to pass this knowledge onto patients that I assist so that they are aware they can put these documents in place to help with End of Life Care. I was exposed to both patient palliative care in a hospital setting and in a community setting.  It was a great opportunity to see the way they both worked. I was able to see a couple of patients that were newly referred and how an initial assessment with these patients was conducted in the community setting and how the palliative care service can support these patients through end of life care with pain management, Occupational Therapy and physiotherapy assessments to establish equipment to help patient at home, such as hospital beds, wheelchairs, ramps etc.  Some of these conversations around end of life are difficult to conduct so it was a worthwhile exercise seeing how the CNS would discuss with patients. I can take this experience back and utilise in my current role as Aboriginal Hospital Liaison.  I am often dealing with patients, families and carers at end of life stage and now feel more comfortable promoting this service and educating patients, families and carers on ways this valuable service can help support and assist them. I was extremely happy to be able to undertake this placement and learn more about palliative care, a service that would certainly be beneficial to patients entering end of life and offering quality of life to these patients.  I am happy to advocate for patients to refer, register and utilise this very worthwhile service.

Cathy Davison(Aboriginal Hospital Liaison Officer)

Central Coast (NSW)

The benefit I have gained from my PEPA program and the sabbatical in palliative care is greater confidence in performing the palliative care of an accurately diagnosed and prognosticated patient in all aspects of their palliative care pathway.  I can confidently explain the pathway and objectives of the pathway to concerned relatives and friends and take the responsibility of prescribing appropriate medications.  I believe I am now able to both empathise and sympathise with these situations and act in a better way as a true patient advocate in their proper care.  I would definitely recommend the PEPA program as an excellent, interesting and informative program for all GPs.

Dr Richland Ward(Medical Director)

Rosebud Hospital (VIC)

Thanks to PEPA I have already started improving palliative care in the ED! First shift back in the ED and I have... a patient come in actively dying from the nursing home... Unfortunately the son wasn't told about the dying process or symptoms... Because of my PEPA placement I was able to confidently discuss the end-of-life process with the patient's son, what symptoms to expect and the management etc.

Kendell Smith(Registered Nurse)

Emergency Department (ACT)

I hadn’t realised that patients with all illnesses could be referred to the palliative care team; I thought that only patients with cancer had access to palliative care... I was able to meet some of the patients and was truly blessed to see how my mentor interacted with the patients. She was soft spoken, gentle and caring. I noticed that she also allowed time for the patient to talk and ask questions. This is important when dealing with our mob as we need to allow time and space for questions or reflection.

Geraldine McNamara(Senior Aboriginal Health Worker)

Umoona Health Service (SA)

I am a Palliative Care Clinical Nurse Specialist, currently based in Orange (rural) NSW and for my 4 day PEPA clinical placement I was keen to see a couple of specialist units in the Sydney metropolitan area. My first area of interest was Motor Neurone Disease (MND). MND is a challenging disease and made more so in rural NSW. The disease is rare enough that health professionals across the board get very little exposure and therefore little experience caring for someone with MND. My goal was to see what services the city units offered their patients, and to see how that could be adapted to a rural setting. I returned home having exhausted my poor brain, but very grateful for having had the opportunity to see and do so much in such a short time.

Louise Hoffman(Specialist Palliative Care Nurse)

Orange (NSW)

I have found the PEPA program to be invaluable, giving me insight into the hospital system and community provision of palliative care. My confidence has increased as a result of the knowledge I have gained. In each of the placements I was welcomed and encouraged to attain my learning needs.  Resource material was supplied to provide further information. I would encourage all my colleagues to seek the opportunity to participate in this program of experiential learning.

Maree Gerven(Community Nurse)

Hobart (TAS)

One of the highlights of my trip was meeting Bev Derschow who developed and designed the Northern Territory Aboriginal Palliative Care model. Bev was able to share her experience in ‘spreading the word’ about palliative care and how finding the ‘right’ person to talk to when conducting a family meeting is imperative to culturally appropriate practice. I learnt that the Territory Palliative Care is a specialist program which provides a consultative service throughout the Northern Territory for clients with a life limiting illness. TPC is multidisciplinary and, while there are differences in staffing in Central Australia and the Top End, the full team includes specialist physicians, specialist nurses, social workers, occupational therapist and a pastoral care worker and volunteers.

Sally Eves(Social Worker)

Kimberley Palliative Care Service (NT)

...just like me, before attending the PEPA program, my colleagues also thought of palliative care as being limited to the care given to the terminal and actively dying person.  This view has now changed and we now know supportive and palliative care starts long before that stage. We now realise that all the patients under our care need supportive and palliative care considerations as they are living with a life-limiting illness and a huge burden of symptoms and psychosocial problems which make quality of life poor... We are now aware of when to refer a patient to the renal supportive care clinic (RSCC) and how to do it.

Margaret(RN / Team Leader)

Community Dialysis Unit (ACT)

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